Darren Sims BEM is crowdfunding
Iʼm raising £250,000 to help 5 year old Jack who has stage 4 HR Neuroblastoma
- Burnham-on-Sea
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£250,000 fundraising needed
EDITED VERSION OF JACK'S STORY
In the middle of January he suddenly started to complain of leg pain and developed a limp. After several visits to GP and A&E Jack was considered ok but after being still in pain we went straight to Bristol children’s hospital.
We were called in to a private room to speak to a consultant and told during the scan they had found a mass sitting above Jack’s right kidney. They said that Jack was presenting well and so it was probably nothing to worry about.
1st February Jack had an MRI and was the day we were told our son had cancer but over the next 2 weeks he had many more tests including, biopsies, mibg scan, ct scan, bone marrow aspiration and a Hickman line fitted ready to start treatment.
15th February all the results were in, we were called into hospital to hear the official diagnosis, Stage 4 high risk Neuroblastoma. Our lives changed instantly.
Jack is going to have a very long road ahead, intense chemotherapy, surgery to try and remove the primary tumour, high dose chemotherapy, stem cell rescue, radiotherapy and immunotherapy.
If things go well his NHS treatment will last around a year. Jack currently has a 40-50% chance of survival but is at high risk of relapse, if this happens the chance of survival is just 5%.
Fundraising is for maintenance treatment that is not available in the UK. This treatment lowers the possibility of a relapse occurring and gives Jack a better chance of survival if it did return. This involves multiple trips to America over 2-3 years in which we would need to cover flights, insurance, accommodation and medical bills. Jack needs to complete his NHS treatment and have no evidence of disease, then travel very soon after to begin his treatment in the US.
If for some reason we couldn't go to America or didn’t raise enough, funds will go towards Jack’s long term care and we would look to help another child who is fundraising for the same treatment.
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Updates
1
- 2 months ago
Darren Sims BEM
2 months ago🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳 £17,500 of the £250,000 target remaining Between EVERYONE'S awesome fundraising so far, over £232,000 has been raised 👏 Absolutely phenomenal 😍 We have a big charity football match in BRISTOL coming up on Sunday 20th October at Bristol Manor Farm Football & Social Club 11.30am kick off We COULD potentially reach the £250,000 target at this event 🥳🥳🥳 If you can help in any way please contact me Darren Sims BEM (Daz) Daz's Rock 4 Charity Founder 07976 629132 dazdazzle@live.co.uk
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Darren Sims BEM started crowdfunding
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Supporters
439
Si C
Nov 14, 2024
Great work Jeff 👏 Apologies for the delay!
Darren Sims BEM
Nov 8, 2024
Tunecore Payment - Cowboy Jack - Daz Sims * Charity Single *
£5.32
Barrie Butler
Nov 7, 2024
£500.00
Novers Park Community and Social Club Charity Cake Sale Tuesday 29th October
Nov 4, 2024
Monies from Charity Cake Sale at Novers Park Community and Social Club Tuesday 29th October Thank you Claire, Amie, Leah, Ian Vowles and all at the Club, thank you Claire for rounding up x
£350.00
Georgie Marshall
Nov 3, 2024
Good luck with achieving your target a brave young man all the very best to you all x🙏🤞
£20.00
Kev and Liza Baker (Daz gig)
Nov 3, 2024
Kind donation from my lovely friends Liza and Kev Baker At their 30th Wedding Anniversary Big thamks Liza and Kev xx
£50.00
Swift and sons roofing
Nov 2, 2024
£10.00
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What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
About the fundraiser
Darren Sims BEM
Burnham-on-Sea
I am a professional musician and fundraiser. Recently received a British Empire Medal in the King's New Year’s honours list for my Daz's Rock 4 Charity fundraising. 2017 - Pride of Britain Fundraiser of the year award (Yorkshire) 2017 - Prime Minister's Points of Light award