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Darren Sims BEM

Darren Sims BEM is crowdfunding

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£47,705
raised of £250,000 target by 376 supporters

Iʼm raising £250,000 to help 5 year old Jack who has stage 4 HR Neuroblastoma

Burnham-on-Sea

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£250,000 fundraising needed
EDITED VERSION OF JACK'S STORY
In the middle of January he suddenly started to complain of leg pain and developed a limp. After several visits to GP and A&E Jack was considered ok but after being still in pain we went straight to Bristol children’s hospital.
We were called in to a private room to speak to a consultant and told during the scan they had found a mass sitting above Jack’s right kidney. They said that Jack was presenting well and so it was probably nothing to worry about.

1st February Jack had an MRI and was the day we were told our son had cancer but over the next 2 weeks he had many more tests including, biopsies, mibg scan, ct scan, bone marrow aspiration and a Hickman line fitted ready to start treatment.

15th February all the results were in, we were called into hospital to hear the official diagnosis, Stage 4 high risk Neuroblastoma. Our lives changed instantly.

Jack is going to have a very long road ahead, intense chemotherapy, surgery to try and remove the primary tumour, high dose chemotherapy, stem cell rescue, radiotherapy and immunotherapy.
If things go well his NHS treatment will last around a year. Jack currently has a 40-50% chance of survival but is at high risk of relapse, if this happens the chance of survival is just 5%.

Fundraising is for maintenance treatment that is not available in the UK. This treatment lowers the possibility of a relapse occurring and gives Jack a better chance of survival if it did return. This involves multiple trips to America over 2-3 years in which we would need to cover flights, insurance, accommodation and medical bills. Jack needs to complete his NHS treatment and have no evidence of disease, then travel very soon after to begin his treatment in the US.

If for some reason we couldn't go to America or didn’t raise enough, funds will go towards Jack’s long term care and we would look to help another child who is fundraising for the same treatment.

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Darren Sims BEM

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    6 months ago

    Darren Sims BEM started crowdfunding

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    Page last updated on: 9/16/2024 19.07

    Supporters

    376

    • Card payment (Brent Farm) & Donation from Daz's Rock 4 Charity supporter

      Card payment (Brent Farm) & Donation from Daz's Rock 4 Charity supporter

      Sep 16, 2024

      £10 card payment from Brent Farm Shop event And also a donation from Saturday night Daz gig from a Daz's Rock 4 Charity supporter (I rounded up)

      £25.00

    • Pepe Jimenez

      Pepe Jimenez

      Sep 16, 2024

      Hope you get better soon ❤️

      £5.00

    • Anonymous

      Anonymous

      Sep 16, 2024

    • YMCA - Heart of England

      YMCA - Heart of England

      Sep 16, 2024

      £50.00

    • The Big Avon Paddle Saturday 14th September (Daz gig)

      The Big Avon Paddle Saturday 14th September (Daz gig)

      Sep 15, 2024

      Very kind donation for my performance at the Big Avon Paddle Sat 14th SeptAn amazing day at The Boathouse, Bath. Looking forward to next year's event. Thank you Bryon CK Sup & Paddle / Channel Kayaks

      £300.00

    • Angela Huygens Cafe Ang

      Angela Huygens Cafe Ang

      Sep 14, 2024

      Kind donation from our lovely friend Angela Huygens at Cafe Ang Mulberry Clutch Bag

      £130.00

    • Tina Cadd

      Tina Cadd

      Sep 13, 2024

      £150.00

    Darren Sims BEM

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    About the fundraiser
    Darren Sims BEM

    Darren Sims BEM

    Burnham-on-Sea

    I am a professional musician and fundraiser. Recently received a British Empire Medal in the King's New Year’s honours list for my Daz's Rock 4 Charity fundraising. 2017 - Pride of Britain Fundraiser of the year award (Yorkshire) 2017 - Prime Minister's Points of Light award

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