I'm raising £250000 to help 5 year old Jack who has stage 4 HR Neuroblastoma

Organised by Darren Sims BEM
Burnham-on-Sea ·Health and medical

Story

£250,000 fundraising needed
EDITED VERSION OF JACK'S STORY
In the middle of January he suddenly started to complain of leg pain and developed a limp. After several visits to GP and A&E Jack was considered ok but after being still in pain we went straight to Bristol children’s hospital.
We were called in to a private room to speak to a consultant and told during the scan they had found a mass sitting above Jack’s right kidney. They said that Jack was presenting well and so it was probably nothing to worry about.

1st February Jack had an MRI and was the day we were told our son had cancer but over the next 2 weeks he had many more tests including, biopsies, mibg scan, ct scan, bone marrow aspiration and a Hickman line fitted ready to start treatment.

15th February all the results were in, we were called into hospital to hear the official diagnosis, Stage 4 high risk Neuroblastoma. Our lives changed instantly.

Jack is going to have a very long road ahead, intense chemotherapy, surgery to try and remove the primary tumour, high dose chemotherapy, stem cell rescue, radiotherapy and immunotherapy.
If things go well his NHS treatment will last around a year. Jack currently has a 40-50% chance of survival but is at high risk of relapse, if this happens the chance of survival is just 5%.

Fundraising is for maintenance treatment that is not available in the UK. This treatment lowers the possibility of a relapse occurring and gives Jack a better chance of survival if it did return. This involves multiple trips to America over 2-3 years in which we would need to cover flights, insurance, accommodation and medical bills. Jack needs to complete his NHS treatment and have no evidence of disease, then travel very soon after to begin his treatment in the US.

If for some reason we couldn't go to America or didn’t raise enough, funds will go towards Jack’s long term care and we would look to help another child who is fundraising for the same treatment.

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About fundraiser

Darren Sims BEM
Organiser

Donation summary

Total
£72,275.97