Proudly fund raising for and supprting the lovely Ella

We are the Custodians MC South East chapter.

We are a Crown servant motorcycle Club made up of serving members of the Armed Forces, Veterans and Emergency Services.

Ella is an absolute darling and has just turned 7 years old.

Ella suffers from a rare condition known as Rett syndrome and also has epilepsy.

Symptoms of Rett syndrome include low muscle tone (hypotonia)

difficulty feeding,

unusual, repetitive hand movements or jerky limb movements.

delay with development of speech.

mobility problems, such as problems sitting, crawling and walking.

lack of interest in toys.

Rett affects 1 in 10,000 girls per year and is even rarer in boys.

Ella’s mummy and daddy, Julie and Adam are trying to fund a new specialist wheelchair for her and we would like to raise a minimum of £3000 to purchase this vital piece of specialist equipment to make just the smallest quality of life improvement.

One of the main advantages of this specialist chair is that it will be more comfortable and have the ability to recline which will allow Ella to sleep.

Just take a look at that beautiful smile and if nothing else that smile alone has got to be worth just one of your great British pounds. Every donation counts and will make all the difference no matter how small.

Thank you for taking the time to read about the lovely Ella and our campaign to help her.

Love & Respect

Custodians MC, South East Chapter