On Tuesday 24th January 2017 we got devastating news our son Ryan was diagnosed with Duchenne Muscular Dystrophy. DMD is a severe and progressive muscle wasting disease. Its 100% fatal ! At this moment in time there is NO CURE. Our aim now is to raise as much money as possible to get into the hands of the worlds leading scientists who have the best chance of making a cure a reality. We all have so much love for Ryan he's our big boy and we can't imagine our lives without him.💙😘xx
DMD is the most common fatal genetic disorder to affect children around the world ( mostly boy's ) , meaning you can't produce dystrophin which is an essential protein you need to build up your muscles. As a result, every muscle in the body deteriorates gradually.
The facts about Duchenne are inescapable:
*Duchenne Muscular Dystrophy is 100% fatal.
*Most children die in their late teens or early twenties.
*Children are usually in a wheelchair by the age of 12.
*It leads to respiratory failure, heart failure, and other debilitating
orthopaedic complications
*One in every 3,500 boys are born with DMD, in the UK alone 2,500
children are affected.
*DMD has no boundaries no matter where you live or what your
ethnic background is.
* A third of all cases start in the womb, with no warning before the
baby is born.
*Girls can also get DMD with around 1% of DMD births being female.

Please help us to try and give our little boy and others affected by Duchenne the best chance to beat this disease.
Ryan is a bright, happy, intelligent 3 year old boy. Hearing such devastating news is completely heartbreaking.You plan your child's future with hopes & dreams,then this all comes crashing down, as a parent this is the worst news possible.
We as a family will make sure Ryan grows up to fulfil his dreams & wishes to fight this terrible disease. Help us to help Ryan & others find a cure by raising as much awareness & money as possible.