I've raised £500 to raise funds for research to cure Infantile Neuroaxonal Dystrophy
Organised by Chris Taylor
My best friend Ben Scott and I are walking the Manchester marathon to try and raise £500 to share equally between our 2 charities. We are walking because Chris has ARVD and is fitted with an ICD
He needs to keep his heart rate low to avoid his heart going into fibrillation. Hence the walking!
A colleague’s child has Infantile Neuroaxonal Dystrophy ( Zoe’s parents ) a rare inherited disorder where Children have a life expectancy of just 5-10 years. There is no known cure so research is vital right now! Zoe’s Story