I've raised £2500 to contribute towards buying Ewan's specialist equipment and adapting the house.

Organised by Cheryl Burn
£4,530
raised of £2,500 target by
Donations cannot currently be made to this page
Banstead, United Kingdom ·Disability support

Story

I am running the London Marathon 2018 for my friend's gorgeous little boy, Ewan.

Ewan was born with Patau's Syndrome which affects about 1 in every 5,000 births.

Patau's syndrome is a rare, serious genetic disorder caused by having an additional copy of chromosome 13 in some or all of the body's cells. It's also called trisomy 13. This severely disrupts normal development and, in many cases, results in miscarriage, stillbirth, or the baby dying shortly after birth. Babies with Patau's syndrome grow slowly in the womb and have a low birth weight, along with a number of other serious medical problems but this hasn't stopped Ewan being the beautiful, smiley little boy that he is.

As Ewan gets older, there are so many things he needs, such as specialist equipment and adaptions to the house in order for him to continue making such amazing progress.

This little boy is one hell of a fighter and I am going to work so hard to raise as much money as possible for him because him and his amazing family deserve the absolute best!! The donations will go DIRECTLY to Ewan to fund anything he needs for now and in the future to give him the best life possible. Xxx

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About fundraiser

Cheryl Burn
Organiser

Donation summary

Total
£4,530.00