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Cath Shaw raised £15,570 from 313 supporters

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Closed 31/03/2023

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£15,570
raised of £15,000 target by 313 supporters

    Iʼve raised £15,570 to help Jamie!

    Funded on Friday, 31st March 2023

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    Story

    Hello,

    Thanks for visiting our crowdfunding page.

    This beautiful picture is of my niece Jamie with her beloved pony, Cameron. 

    Living with autism, Jamie can struggle with daily life. Cameron gave Jamie a much-needed safe space. He was her best friend and their bond was unique. When Cameron died two years ago the grief was so overwhelming, Jamie stopped talking.

    However, it also triggered a neurological response and Jamie's body began to shut down. In a devastatingly short time, the whole family had to watch, helplessly, as Jamie's condition has deteriorated until she came unable to move.

    Jamie was diagnosed with Functional Neurological Disorder (FND), a complex condition that affects the function of the nervous system. The messages the brain and body send to each other gets confused, resulting in full body paralysis, painful spasms and seizures (www.neurosymptoms.org).

    On her 21st Birthday, I watched as Jamie sat in a wheelchair while my sister spoon-fed her a piece of her birthday cake. Jamie still hasn’t spoken a word since she lost Cameron.

    There are no services for FND in Argyll and Bute so my amazing sister, Jenny, spent hours and hours researching different private treatment options. She found a trauma therapist to help Jamie process the grief of losing Cameron and an FND neuro-physiotherapist in Edinburgh to help teach Jamie’s body how to move again.

    Unfortunately, these treatments  (plus travel, accommodation and specialist equipment) are expensive. Family and friends kindly helped out. However, more money was needed to help Jamie’s recovery and so we started this crowdfunding page to fund 8 weeks intensive treatment.

    In just 4 months, we had raised over our target of £15,000 through independent donors and a range of community events. These included Jump for Jamie, a horse jumping event held by the Pony Club and local gardeners opened up their gardens to raise money. In September 2022, we held Jamie's Ceilidh in Tayvallich Village Hall to celebrate reaching our target.

    Jamie continues to receive regular treatment. She is receiving neuro processing to help her nervous system regain stability and allow her to begin working with the neurologist physiotherapist on a more intensive level.

    Jamie is slowly recovering. She has been using neurotechnology, a Molii Suit which is designed to stimulate her muscles. Jamie was recently able to swim FOUR lengths of her local pool using only her right arm. This happened after regular use of the Molii suit which has stimulated her arm, in particular. Jamie continues to show amazing adaptability, determination and creativity, for example, she has continued her love of painting by using a paintbrush with her mouth!!

    Thanks to the incredible kindness of Jamie's local community, she has been given this opportunity to continue to recover. Whilst we have raised our target amount, there are ongoing costs associated with Jamie's ongoing disability and treatment. Therefore, we welcome any donations gratefully.

    Thank you for visiting Jamie's Just Giving page.

    If you have any questions or comments, please contact me directly on cath_shaw@outlook.com, mobile 07943 394157 or you can find me on facebook (Cath Shaw https://www.facebook.com/profile.php?id=100057634028911) where I will give updates on Jamie's recovery.

    Thanks so much! Cath xxx

    Updates

    23

    • Cath Shaw2 years ago
      Cath Shaw

      Cath Shaw

      2 years ago

      Recovery update! This week, Jamie completed her first jigsaw since losing her physical functioning in September 2021. Jigsaws have always been an important part of Jamie's life (and she is freakishly good at them) YAY!!

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    • Cath Shaw2 years ago
      Cath Shaw

      Cath Shaw

      2 years ago

      During rehab, Jamie has been regularly wearing a Mollie suit, a specially designed trouser and jacket set which contains over 50 electrodes, designed to stimulate nerves all over the body, including J's nervous system. Jamie's right arm is beginning to regain functioning and amazingly, she is now able to feed herself breakfast! The money raised from Jamie's Ceilidh in September & Libby's Lunch earlier this month will be used to buy a suit (costs over £5000). This will allow Jamie's recovery to continue #communitykindness #gratitude.

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    • Cath Shaw2 years ago
      Cath Shaw

      Cath Shaw

      2 years ago

      Wee heads up that Libby MacDonald is very generously hosting a "coffee lunch" on SATURDAY 15TH OCTOBER at 12.30 pm at Tayvallich Village Hall. There will be sandwiches, delicious home baking and a good old raffle (for those of you desperate for more raffletastic action after Jamie's Ceilidh a few weeks ago!). Libby is donating ALL proceeds to Jamie's Just Giving fund. Once again the village community comes together to support Jamie's treatment recovery. Amazing!

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    3 years ago

    Cath Shaw started crowdfunding

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    Page last updated on: 1/11/2023 18.15

    Supporters

    313

    • Plants for a pound. Xx

      Plants for a pound. Xx

      Jan 11, 2023

      £20.00

    • Anonymous

      Anonymous

      Nov 19, 2022

      Touched by your story - just hope you can raise enough to avoid having to sell your home.

    • Anonymous

      Anonymous

      Oct 29, 2022

    • Joyce Anson

      Joyce Anson

      Oct 29, 2022

      Lovely to support such a talented young lady in her search for what we just take for granted.

      £50.00

    • Alvis

      Alvis

      Sep 30, 2022

      Hugs and love to Jamie XXX

      £30.00

    • Anonymous

      Anonymous

      Sep 28, 2022

      £20.00

    • Elspeth Burrows

      Elspeth Burrows

      Sep 26, 2022

      It was lovely to meet you on Saturday Jenny. Sorry I couldn’t wait and enjoy the ceilidh, but hope it went well. Wishing Jamie all the very best for the future.

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    Cath Shaw

    Cath Shaw

    Jamie's auntie.

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