Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope is crowdfunding
Iʼm raising £5,000 to Congenital Myotonic Dystrophy Ride of Hope, As a team we raise awareness and funds for PAKs for children with this life limiting condition
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Story
Josh was born with congenital myotonic dystrophy. It is a neurodegenerative condition with no treatment and no cure.
The congenital myotonic dystrophy ride of hope was born out of a need to raise awareness of this condition. It is a motorcycle ride that gets bigger year on year, spreading awareness as we ride from lands end to loch ness. Subsequently, we created our charity, Positive Aid for Kids.
We supply funds or equipment for families of children living with congenital myotonic dystrophy. Every penny raised goes to this cause
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Updates
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- 8 months ago
Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope
8 months agoWow, thankyou all, so much, the team are currently getting ready for our 2nd charity Easter Egg Run.
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Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope started crowdfunding
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Supporters
100
Sizzler
Oct 14, 2024
£10.00
Dan Burnett
Oct 14, 2024
Hope this helps. :)
£10.00
Chris R
Sep 30, 2024
hope this helps a little
£20.00
Eccles Electrical (Daz Owen )
Sep 23, 2024
Keep up the good work Dave. ❤️.
£5.00
Lass in Red
Sep 20, 2024
Thanks for all the photos and every little counts to help the cause x
£10.00
Anonymous
Sep 15, 2024
£5.00
Yorkshire Classic Motorcycle Club
Aug 19, 2024
Thank you for taking photos during the Classic Bike Show Dave Dewer. This event helps our trials club raise money for charities. We really appreciate your support and generosity during this event.
£50.00
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What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
About the fundraiser
Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope
YORK
What is Congenital Myotonic Dystrophy? Medically it is a progressive neurodegenerative, life limiting, multi systemic condition. In plain language its a THIEF .. Its stealing the skills these children have gained one by one. Its brutal & relentless. NO TREATMENT . NO CURE