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Biffy lynch raised £18,920.22 from 925 supporters
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Closed 07/08/2017
Iʼve raised £18,920 to Assist the family of Daniel Downing, who at 5 yrs old is 200 miles from home receiving palliative treatment for a terminal brain tumour.
- Funded on Monday, 7th August 2017
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Story
Daniel is the most amazing 5 year old "young man" you could ever wish to meet. Full of life, mischievous, polite, intelligent, innocent, and above all, loving. He is adored and cherished by his mum Steph, his dad Robbie, his brother Jack (8yrs old), and Steph's partner, Ady. Daniel has such an adorable character that he really fits the phrase "once met, never forgotten".
Sadly and oh so very suddenly, Daniel has been diagnosed with a very aggressive cancer called pontine glioma. Survival is averaged at 9 months from diagnosis.
To make this terrible situation even harder for the family, the treatment to give him the longest life possible, and to allow time for some extra special memories to be made, has to be administered in Bristol, some 200 miles away from the family home and almost 300 miles away from his dad. The first course of treatment is daily for the next six weeks. Further treatment plans will be dependent on how Daniel responds.
This page has been set up to try to relieve the family of one of the practical aspects that immediately face Steph and Robbie, (Mum and Dad) that being the cost of being at Daniel's bedside, daily for Steph and when time away from work allows for Robbie , whilst at the same time trying to maintain as much normality as possible for Jack. In simple terms, it is going to be very expensive for them to set up a temporary home and life in Bristol for the next six weeks, at a time when their heads are simply trying to understand the devastating news that no parent should ever hear.
There is no cure. There are no words that any of us can say that will erase the pain and fear for this loving family. If together we can raise enough money by each finding a few spare pennies, so that it is one less thing for them to worry about right now, allowing them to focus on Daniel and Jack, then that would be an amazing gift.
Back a moon........ x
Updates
6
- 8 years ago
Biffy lynch
8 years agoIt's not very often I am lost for words... when Marcus and I lay in bed 4 weeks ago wording a crowdfunding page I don't think we dared to dream that it would be this bloody amazing. Stephanie and Robbie will be able to fill Daniels days with amazing memories. Stephanie, Ady and Jack and Robbie, Caroline and their family have a heartbreaking journey ahead of them as Daniel Downing our beautiful Superhero continues his treatment... Memories last forever, you have given this family that. Each and everyone of you are in my heart. Thankyou x
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- 8 years ago
Biffy lynch
8 years agoSo as you and I (each and every 917 of you that have gifted memories ) are in the final flings of one of the most beautiful, caring and sharing month long love affairs that this world has ever seen (crowdfunding), Daniel is in the early days of his treatment and of course leading his superhero adventure with a smile, his brave little soul could teach us all a thing or two..... and yours Stephanie I am so very proud of you. Back a moon 💙🌙x
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- 8 years ago
Biffy lynch
8 years agoSo as our superhero starts the next phase of his adventure at the home (Bristol Royal Children's Hospital) of many amazing superheroes (although as bias as I may be Daniel Downing is the most " Superist" ) then I just wanted to say LOOK ... just blinkin LOOK at how many pennies each and every one of you have gifted to make magical memories for Daniel and his family. These memories will last a lifetime ..his lifetime and for those that hold him dear in their hearts. You ...YOU made that happen .. Thankyou from my happy achy heart - Biffy x
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Supporters
925
James Cooper
Aug 6, 2017
Wishing all our best xx
£20.00
Anonymous
Aug 6, 2017
Anonymous
Aug 6, 2017
Known Steph for many years since she was a young SE and then Reggy, lovely Girl, and top mate! Really feel for her and the whole family xxx
Debbie, Mark & Loren Verner
Aug 5, 2017
No parent should have to go through this, well done Biffy for your organisational skills xxx
£20.00
Carolyn Crocker
Aug 4, 2017
I worked with Steph at Hyde Park Junior School and was really sorry to hear the terrible news.
£30.00
Kimberly Bo
Aug 2, 2017
Sending with ❤️ and hope for an amazing child and family.
Michelle Mason
Aug 1, 2017
£10.00
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