I've raised £6000 to Assist the family of Daniel Downing, who at 5 yrs old is 200 miles from home receiving palliative treatment for a terminal brain tumour.

Organised by Biffy lynch
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Health and medical

Story

Daniel is the most amazing 5 year old "young man" you could ever wish to meet. Full of life, mischievous, polite, intelligent, innocent, and above all, loving. He is adored and cherished by his mum Steph, his dad Robbie, his brother Jack (8yrs old), and Steph's partner, Ady. Daniel has such an adorable character that he really fits the phrase "once met, never forgotten".

Sadly and oh so very suddenly, Daniel has been diagnosed with a very aggressive cancer called pontine glioma. Survival is averaged at 9 months from diagnosis.

To make this terrible situation even harder for the family, the treatment to give him the longest life possible, and to allow time for some extra special memories to be made, has to be administered in Bristol, some 200 miles away from the family home and almost 300 miles away from his dad. The first course of treatment is daily for the next six weeks. Further treatment plans will be dependent on how Daniel responds.

This page has been set up to try to relieve the family of one of the practical aspects that immediately face Steph and Robbie, (Mum and Dad) that being the cost of being at Daniel's bedside, daily for Steph and when time away from work allows for Robbie , whilst at the same time trying to maintain as much normality as possible for Jack. In simple terms, it is going to be very expensive for them to set up a temporary home and life in Bristol for the next six weeks, at a time when their heads are simply trying to understand the devastating news that no parent should ever hear.

There is no cure. There are no words that any of us can say that will erase the pain and fear for this loving family. If together we can raise enough money by each finding a few spare pennies, so that it is one less thing for them to worry about right now, allowing them to focus on Daniel and Jack, then that would be an amazing gift.

Back a moon........ x

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About fundraiser

Biffy lynch
Organiser

Donation summary

Total
£18,920.22