Franks story 🤍

Frankwas born in January with Spinal Muscular Atrophy Type 1. SMA is a rare, genetic, neuromuscular condition. It causes progressive muscle weakness & loss of movement due to muscle wasting. SMA type 1 is a life limiting disease which can not be detected during pregnancy & without treatment the child’s life expectancy is 2 years of age.

Franks treatment has only been available on the NHS since 2021 as the government deemed it too expensive of a procedure for such a rare disease, it took 7 years of clinical trialling to prove how life changing to children with SMA it can be.

Frazer, Wade & all of our amazing friends and family will be completing the 3 peaks challenge in 24hours. Ben Nevis, Scaffel Pike & Snowdonia. All money that is raised will be going to @sma_uk. This is a trust that receives no government funding & purely relies on public services to keep their services running to help children with SMA get the help they need & give them the best life possible.

Frank is an absolute inspiration to us all. He defies every odds that he’s up against and powers through. He is an amazing, beautiful funny, little soul. Our little warrior & adored by our whole group of friends and supportive family.

Any donations will be massively appreciate

On August 25th, we will be completing the 3 peaks challenge, attempting to summit Ben Nevis, Scafell Pike and Snowdon in just 24hours.

We are raising money to help give Frank the best chance possible of getting home, no matter what he needs.

Please help this little warrior get home!