Kaiden is 14 months old born 2 weeks early traumatically taken to SCBU after 5 days eventually got to come home as a family.
We noticed he didnt use his right arm hand much and just assumed he would be left handed
in september 2018 when he fixated his eyes to rightside and was completely absent all floppy .. very scared my son rushed us to hospital where they admitted him and think he had seizure , discharged us following day but had to go back further tests.
10 days later same thing happened rushed in again admitted him for 6 days and had the tests brought forward look at eyes his heart a eeg on brain and mri.
The eeg came back with abnormal brain acrltivity and mri came back showing substantial loss of brain right side and left still unknow why but consultants think he may had stroke while inside me mid trimester pregnancy but not.confirmed yet.
He was diagnosed with epilepsy,cebral atrophy and right side hemipleigia.
He has 2 paedatric consultants in ipswich one community and one neurology and eplepsy nurse also a paediatric consultant neurology addenbrookes. He has regular occupational therapy, physio therapy and speech therapy. He also attends a charity based organisation specializing in disabilities of such called bumblebees.
Kaiden still cannot crawl or walk he rolls to get where he wants does get frustrated as see his little friends getting around .He is a very determined loving sweet little boy that we want to give every chance to have as normal life as possible.
We have found a organisation callled CIMT therapy based in manchester which should be able to help get his right arm hand and right side normal so he can use walk drnk out cup hold bottle open hand hold and eat food play toys both hands, at present its like he doesnt even realsie his has a right arm and hand.
He also has seizures focal/absent seizures .
He is the sweetest happy content little boy we want to give him the best life he can with his diabilites