My name is Allie and I am 25 years old. Until May this year, I was a normal, healthy post-graduate and almost newly wed excited to start my life. For the past few months, I have been experiencing excruciating, life-limiting, 24/7 symptoms which have completely uprooted my life. “Patchy” burning all over my body, and extreme burning pain all over my feet when I try to walk. Due to this, I’m wheelchair bound when only a few months ago I would walk 10k steps per day and did pole fitness.

This has taken a massive toll on my mental health and meant I have had to leave my job in the prison service. Scared and looking for answers, I came across the term “small fibre neuropathy” which accurately describes all of my symptoms. Unfortunately, the social health system is not interested despite my rapidly declining mobility. I was told while hospitalised due to this that I would be referred to neurology- this was almost 2 months ago, and I found out last week this was never put through. Even when I am eventually seen, the NHS rarely does the skin punch biopsy required to diagnose SFN. Without accurate diagnosis, I cannot pursue treatment that could be life changing, such as IVIG or low dose naltrexone.

I found a private clinic in London willing to do the biopsy, however for this I was quoted £2350. Having left my job, and my husband having to practically become my carer, we do not have that type of money spare. Hence, I am asking the generous public for support. All money will go towards my diagnostic test and I would be forever grateful for any support to help get my life back on track.

Thanks for taking the time to visit my JustGiving page.