I have created this fundraising page to increase the awareness of Rupert's disease called Vici and also raise money for him so that he can live his best and most comfortable life. Vici is the most extreme diagnosis that can ever be diagnosed in a child such as Rupert where it affects every single part of his body from his head to his toes. Rupert is the only known young child to have this disease in England and only the second ever case in the UK. We want to raise money for him so that we can buy specialist equipment for him to be comfortable at home as well as when he is out and about with us and his parents. Thank you.