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Amelia Hawkes

Amelia Hawkes is crowdfunding

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£10,580
raised of £10,000 target by 207 supporters

Iʼm raising £10,000 to support Brogan with her Friedreich’s Ataxia diagnosis

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Story

Brogan’s recent diagnosis with Friedreich’s Ataxia (FA), a very rare and incurable disease affecting just 1 in 50,000 people, is a testament to her resilience and courage. At just 15 years old, Brogan is facing an uncertain future dealing with this rare genetic disorder with unwavering determination and grace. Despite the physical limitations imposed by FA, including symptoms such as major neurological problems, muscle weakness and a loss of balance and coordination, Brogan refuses to be defined by her condition. FA mostly affects the spinal cord and the nerves that connect the spinal cord to the body’s muscles and sensory organs. This is a life limiting degenerative disorder, but Brogan continues to embrace life with an infectious optimism and an unbreakable spirit. With every step she takes, she inspires those around her to cherish each moment and never take anything for granted.

However, the financial strain of managing FA will place a heavy burden on Brogan’s family. The costs of medical care, specialised equipment and rehabilitation - among others - are staggering. As they navigate this challenging time, they need our support now more than ever.

By donating to Brogan’s campaign, you can make a tangible difference in her life. Your generosity will ensure that Brogan has access to the resources and support she needs to thrive. Together, we can ease the financial burden on her family and empower Brogan to continue living the normal life every 15 year old girl deserves. In addition to this, your money will also go towards supporting Ataxia UK and their ongoing research into finding a cure for this life-limiting disease. Ataxia UK fund research into finding treatments and cures, and offer advice, information and support to people affected by the condition.

Whilst we have no set target every donation, regardless of size, contributes to improving Brogan's quality of life and helps advancing research into finding a cure.

Join us in rallying behind Brogan as she bravely confronts Friedreich’s Ataxia head-on. Your kindness and compassion will not only provide practical assistance but also serve as a source of strength and encouragement for Brogan during this difficult time.

Thank you for your generosity and support. Together, we can help Brogan defy the odds.

Love Amelia and Sophie, on behalf of Brogan and her family x

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Updates

2

  • Amelia Hawkes3 months ago
    Amelia Hawkes

    Amelia Hawkes

    3 months ago

    Brogan has made incredible strides in her journey! She's now hitting the gym, swimming regularly, and working with a personal trainer to strengthen her muscles. Her hard work is already paying off—she’s noticed improvements in her balance when standing still. Recently, she’s even started lifting weights, beginning at 20kg! Her determination and motivation continue to inspire us all every day 🙏🏽 Thank you so much for your continued support.

    Update from the Page owner

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  • Amelia Hawkes5 months ago
    Amelia Hawkes

    Amelia Hawkes

    5 months ago

    Hi everyone, We just wanted to touch base and say a huge thank you for your support and donations over the last couple of months. Your kindness and generosity has been overwhelming and we cannot thank you all enough. We have decided to make our first donations to Ataxia UK and Cure FA this week in the hopes of finding a cure for Friedreich’s Ataxia. Please do continue to keep sharing our page, and sharing the word on FA and Brogan. She has handled the news of her diagnosis so well and we are so proud of her! Karly, Morgan and Brogan xxx

    Update from the Page owner

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7 months ago

Amelia Hawkes started crowdfunding

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Page last updated on: 10/17/2024 18.39

Supporters

207

  • Ms Nufell and Tomo

    Ms Nufell and Tomo

    Oct 17, 2024

    Use this money to make Brogan happy however you can, as her mum whatever you think best Lots of love Nikki and Tomo

  • Anonymous

    Anonymous

    Jun 24, 2024

  • Josh & Issy x

    Josh & Issy x

    Jun 23, 2024

    Sending lots of love ❤️

    £50.00

  • Audrey Smith

    Audrey Smith

    Jun 20, 2024

    In memory of mason 💙💙Audrey, family and friends were so pleased to be able to raise money for Brogan, and truly remarkable young lady.

    £3,750.00

  • Jamil

    Jamil

    Jun 17, 2024

    £40.00

  • Rosa & Mick

    Rosa & Mick

    Jun 17, 2024

    Thinking of you !

    £100.00

  • Stephen Burke

    Stephen Burke

    Jun 16, 2024

    Congratulations mate for completing the half marathon and for such an unbelievable cause. You are smashing your training and an inspiration to many! Keep it up lad :) x

    £50.00

Amelia Hawkes

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About the fundraiser
Amelia Hawkes

Amelia Hawkes

Essex

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