Our beautiful baby boy Rycroft passed away aged just 16 months. He was a smiley, sociable and inspirational little boy who charmed everyone who met him.

Rycroft suffered from Shwachman Diamond Syndrome (SDS), a rare genetic condition that affects multiple systems within the body and, in a quarter of cases, results in bone marrow failure.

For a huge proportion of his short life he was cared for by the wonderful team on the children’s ward at Colchester General Hospital.

In March 2023 he was admitted to Great Ormond Street Hospital for a bone marrow transplant – and although the transplant was initially successful, he passed away a few months later after contracting a subsequent infection.

We are devastated by his loss and want to raise funds to help other families who may go through what we have been through, and to raise awareness of the incredible work of the medical professionals who cared for him. We have chosen three charities that do amazing work to help children like Rycroft survive and thrive.

Great Ormond Street Hospital, Fox Ward

Colchester Hospital, Children's Ward

SDS UK

All funds donated will be split evenly and will go to support these charities, who played such a huge role in giving Rycroft and us 16 wonderful months together, and give us hope that other families in a similar position will see their children grow up to live full and happy lives.

Thank you,

Andrew and Catherine