On Wednesday 28th August 2024 we very sadly lost our beautiful middle daughter Lili. She was an absolute joy and we were so lucky to have her for 24 years. During that time she touched many lives and will always be remembered for her easy smiles and infectious laughter.

We have been supported along the way by so many friends and family and also some amazing charities and organisations.

We have decided to support three of the main charities who have helped us throughout her life. We are very grateful for any small donation you can give and we will then send the monies to these charities in due course.

The MPS Society - This is the charity which looks after families with Lili's condition and also other similar illnesses. They fund research and offer family support where needed, including wellbeing.

The Music Man Project - Lili attended this from the age of 3. She was able to perform at concerts at the Cliffs Pavilion, The London Palladium and the Royal Albert Hall. Our last beautiful photos of Lili were used in the Echo from a wonderful day of music she enjoyed a couple of days before she went to hospital.

Little Havens Children's Hospice - Lili has used the hospice for respite for 21 years. They have offered the whole family support during this time. We were also incredibly grateful for the amazing end of life care for Lili and for looking after us at this difficult time.

Thank you so much to everyone for all your kind wishes and support at this time and for so many years.

Sarah, Rob, Isabelle and Lucia x