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Katie Fleming raised £16,253.53 from 307 supporters
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Closed 10/09/2017
Iʼve raised £16,253 to Fynn's First Footsteps
- Plymouth, United Kingdom
- Funded on Sunday, 10th September 2017
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Story
Fynn is two years old and an identical twin born in August 2014 along with his brother Leo at 30 weeks with twin to twin transfusion. Fynn weighed just 3.5lb and his Leo 1.7lb. They fought for their lives for 2 months and were able to leave the hospital in time for their first Christmas.
It became apparent by the age of one that Fynn was not reaching his milestones and was still unable to sit, crawl or support himself in anyway. Finally it was confirmed sadly that Fynn had Spastic Cerebral Palsy. This makes Fynn's muscles stiff and his movements jerky. His increased muscle tone can make movements difficult, sometimes impossible. Fynn does not sleep at night due to painful muscle spasms which is alleviated slightly by medication but he still needs turning over from where he is just too exhausted. This quite often leaves him very tired and aching the next day and the cycle begins again.
Fynn is not able to support himself at all therefore a lot of equipment is required for him to participate in activities with others in nursery, out and about and at home. Fynn's frustration propels him to keep up with his twin brother and the determination has enabled him to achieve small steps like holding a fork and spoon in his own way. Something we perhaps all take for granted.
In May2017 we met with consultants at Bristol Royal Childrens Hospital to see if Fynn was a suitable candidate for Selective Dorsal Rhizotomy (SDR). SDR is the dividing and cutting of nerves in the spinal cord. We were told that he was an excellent candidate. This operation would mean that most of his painful spasms would cease and that this would lead to him hopefully walk unaided. The fall then came that it is not currently funded on the NHS.
Please can you help us to fund his operation, the current cost is around £38,000. This would change Fynns life forever. As his parents it parents it is something we would make the ultimate sacrifice for, for Fynn to be able to walk with his brother.
Updates
2
- 8 years ago
Katie Fleming
8 years agoWe have woke up this morning to over £7000 being raised. I wish there was a way we could thank you all individually for caring so much about Fynn and our family to be so generous with your time, effort and money. Daily you are all making a huge difference to our lives by making us feel very humbled but most of all getting us closer to our target and getting Fynn walking. You are all angels ❤️
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- 8 years ago
Katie Fleming
8 years agoHi, I'm Fynn, i'm 2yrs old and have Cerebral Palsy. Yesterday my Mummy and Daddy found out I'd be a great candidate for an operation that means I could walk on my own! I might even be able to chase after my twin brother, Leo! The operation is very expensive, but all my family and friends are going to raise money for me through this page and the Just Giving site below. Please follow me and my journey and please donate where you can! #fynnsfirstfootsteps #cerebralpalsy #crowdfunding #ttts
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Katie Fleming started crowdfunding
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Supporters
307
Jarvis Cocker
Sep 9, 2017
big kahunas for your roast my selfie participation
£5.00
Ann marie Jones
Sep 8, 2017
Here is £300 towards your total its been a huge pleasure helping to raise this through various cake sales and other raffles. Good luck with the rest 😀 xx
£300.00
Sheryl Hanks/go team fynn
Sep 8, 2017
Let's keep those pennies coming in!
£552.70
Sarah Manning
Sep 7, 2017
£10.00
Caroline Gold
Sep 7, 2017
Thanks to Chris Finch for making us aware of your little boy.... I hope huge is running around causing mayhem soon 😊👍xx
£5.00
Kirsty Reid
Sep 7, 2017
Xxxx
£5.00
Anonymous
Sep 7, 2017
I want to remain anon but I also wanted to give credit to Chris Finch who suffers with Congenital musclier distrophy. He went on a roast my selfie group to raise awareness for such a good cause.
£5.00
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About CrowdfundingAbout the fundraiser
Katie Fleming
Plymouth, United Kingdom
Raising money for 2 year old Fynn- diagnosed with Spastic Cerebral Palsy a year ago, Fynn has now been found to be a suitable candidate for Selective Dorsal Rhizotomy (SDR). A surgery that would enable Fynn to walk unaided and hand in hand with his twin brother Leo.