It is the worst feeling ever when a mummy is told their child is going to die and there is nothing more that can be done for him.

He is a one in a million child and he deserves to be heard. I want people to realise that having a child is the most precious gift anyone could ask for. Please don’t take it for granted. Nicholas has gone through so much already and is still fighting. He has touched the heart of so many and hopefully with this page he will touch the heart of many more. Nicholas has made me realise it is all about the quality of life rather than quantity. He is the happiest child anyone will ever meet.

This page was originally set up at the beginning of the year to raise money for a radiotherapy treatment they were trialing in America, however, we have recently had some life altering news and this page is to help keep Nicholas alive.

Thank you for spending the time to read Nicholas story, and any donations to give Nicholas the future he deserves will be much appreciated. xx

https://gogetfunding.com/flighting-for-the-future/ is our other fundraising page.

Nicholas has had a tough start to life. He has bern diagnosed with countless issues and life is just getting harder. Nicholas has primary intestinal lymphangiectasia, hypogammaglobulanemia, deletion of chromasome 1q21, hearing loss and many other unrelated issues. A couple of years ago they found a mass in his stomach. It is known as a lymphangioma. They are unable to operate on the mass as it is surrounding his major blood vessels. Since then the mass has continued to grow and is now putting pressue on all his major organs including his heart. Under the NHS there is nothing more they can really do for Nicholas apart from wait and see. I feel like doing nothing is only going to make him worse as his breathing is now being affected. There is a special test in Boston we need to get him there to have. Following the results they have offered a possible solution.