On the 24th November 2016 we received the devastating news that our precious 6 year old daughter, Eve had a brain tumour. It was a large brain tumour and it was decided that she needed surgery almost straight away to remove it. The tumour had put so much pressure on both of her optic nerves it was decided that surgery was the best course of action.

Then came the longest wait of our lives. Eve's tumour was so rare the medical professionals struggled to categorize it straight away. It was sent to Great Ormond Street and Germany for thorough analysis. After 7 weeks we finally got the diagnosis that Eve had Myoepithelial Carcinoma and she has just started a course of Chemotherapy spread over 12 weeks.

We are currently in the process of applying for funding from the NHS to fund Proton Beam Therapy in America. We are hoping and praying that our application is accepted so Eve can receive the treatment she needs to prevent the tumour from ever growing back. If we are successful with our application then the treatment, flights and accommodation is all paid for. If we are not successful we will need in the region of £150,000 to fund the treatment, flights, accommodation, car hire and living costs ourselves.
We've been told we will be in America for approx 9 weeks while Eve has her treatment. There will be an initial 2 week assessment period, 6 weeks therapy followed by a further week of assessments.

If our application for funding is not accepted, we will do all we can to raise £150,000 so Eve can receive the Proton Beam Therapy.

Thank you for taking the time to read our story.

16.2.17 update

We have been to see our consultant and Eve's tumour has been re-named as an Astroblastoma - an extremely rare tumour that has only been discovered in the last 17 years or so.. The new naming of the tumour does not affect our case for Proton Therapy, but it does mean we have to re-submit our application to the panel.