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Daniel Turner

Daniel Turner is crowdfunding

0%
£110,823
raised of £100,000 target by 2091 supporters

Weʼre raising £100,000 to help 2 year-old Louie beat life-threatening Cancer

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Story

Our 2 year-old son, Louie, was diagnosed with High-risk Neuroblastoma and was given a 50% chance of long-term survival at diagnosis. We are desperate for your help.

Up until 19 months of age, Louie was a happy and healthy little boy. He was very active, he loved playing outside, going to the beach and playground, and loved his food - his favourite was cottage pie which he would manage to get everywhere!

However, in June 2023, Louie had become a little less active. He wasn't sleeping well and started to refuse to eat. After a number of visits to the GP, we decided to take him to A&E - something wasn't right - but at that time, we couldn't imagine how severe things could be. Our world was turned upside down when Louie was diagnosed with a rare type of cancer. The cancer is High-risk Neuroblastoma, and at diagnosis, there was a 50% chance of long-term survival.

Since then, Louie has had so much treatment, he has suffered so much, but has still managed to keep his smile throughout. He has had 8 rounds of Chemotherapy, a 10 hour surgery, high-dose chemotherapy and radiotherapy. He has just started immunotherapy.

Initially, the 17 cm long tumour responded very well to treatment and after initial chemotherapy and surgery in October, the tumour was only 0.5 cm. However, the tumour has not responded to treatment since then, and remains that size and is still an active tumour.

If the tumour is not dead upon completing immunotherapy, there remains only a 50% chance of long-term survival. If Louie enters remission before the end of his treatment, there is still a 35% chance of relapse. We have been told there is currently no cure available in the UK in the event of relapse.

We can't sit and hope for the best - we need to act and we need your help. There is a treatment available in the US which has just been approved by the FDA. Early data suggests this treatment, DFMO, is very effective at helping to treat the cancer and in preventing relapse. We are aiming to raise £100,000 in 5 months to make sure we give Louie the best chance of survival and get him to the US for treatment.

We would really appreciate it if you could spread our story and donate if you can comfortably do so.

Thank you.

The total amount will be put towards: 1.Treatment received in the US, 2.Clinical consultations in the US, 3.Any associated testing or scans required in the US, 4.Flights to and from the US and potentially accommodation, 5.Any other cost associated with treatment in the US.

With the treatment recently having been approved by the FDA, pricing of the drug itself is not yet confirmed. Any money received via fundraising which is not spent on the upcoming treatment in the US or associated costs will be kept in a trust, or equivalent. This would then be used to fund future medical treatment Louie may need because of the cancer or side-effects of the treatment he has received.

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Updates

7

  • Daniel Turner1 month ago
    Daniel Turner

    Daniel Turner

    1 month ago
    Update from the Page owner

    We wanted to let you all know that we have reached our total! We can’t thank you enough for your support. There have been so many people donating, sharing, organising and participating in events and we are completely overwhelmed. We are now planning a trip to US in August, which will be confirmed following Louie’s 4th round of Immunotherapy in June. This is possible because of all of you! There are still a number of events planned by Life for a kid, Reckitt, Wolds, Nags Head and Hed’on Inn. We really can’t express how grateful we are.

    Share this update to help us raise more

  • Daniel Turner2 months ago
    Daniel Turner

    Daniel Turner

    2 months ago
    Update from the Page owner

    Hi All, Just wanted to provide an update and thank you all for helping us raise over £78,000 so far! We are now over 3/4 of the way to our goal. There have been a number of fundraising activities already which have really helped to boost our total. There are lots more fundraising activities planned for the near future and we are so grateful for all of the support.

    Share this update to help us raise more

  • Daniel Turner2 months ago
    Daniel Turner

    Daniel Turner

    2 months ago
    Update from the Page owner

    As of today, we are half way to reaching our total! We can't believe how kind and generous you have all been. We just wanted to say a massive thank you to you all for donating and sharing. We really can't tell you how much this means to us.

    Share this update to help us raise more

3 months ago

Daniel Turner started crowdfunding

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Page last updated on: 5/28/2024 18.35

Supporters

2091

  • Nags Head Darts night

    Nags Head Darts night

    May 28, 2024

    Good luck Louie £5000 was raised another £3000 to be donated yet awaiting some of the funds still coming in final payment will be on in the next week

    £2,000.00

  • Karen

    Karen

    May 25, 2024

    Keep fighting little man

    £10.00

  • david

    david

    May 24, 2024

    I hope ALL GOES WELL

  • R&D Ops Wellness Quiz Night 22 May 24

    R&D Ops Wellness Quiz Night 22 May 24

    May 23, 2024

    Cash donations for participation in the R&D Ops Wellness Quiz Night 22 May 24. Thank you to all who participated and donated on the night!

    £43.00

  • Lisa and Jemma

    Lisa and Jemma

    May 22, 2024

    Quizzing for a good cause!

    £10.00

  • Stout in the first round

    Stout in the first round

    May 22, 2024

    Quiz night 22 may

    £4.00

  • Sian

    Sian

    May 22, 2024

    Stout in the first round

    £2.00

Daniel Turner

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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About the fundraiser
Daniel Turner

Daniel Turner

Hull, UK

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