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Ian & Keeley Drysdale

Ian & Keeley Drysdale is crowdfunding

49%
£226,041
raised of £460,000 target by 4385 supporters

Weʼre raising £460,000 to fund Anna's cancer treatment in New York

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

We are delighted to say that Anna is in New York and started her Immunotherapy treatment on Wednesday 22nd January.

Through the huge efforts and generosity of our local and wider community and with an incredibly generous donation made directly to MSK hospital in New York, we've reached a major milestone hitting our initial target to enable the payment of the treatment deposit.

We are immensely relieved to have reached this point and we're very grateful that fundraising is ongoing to support additional costs as we now know that Anna's treatment is going to take longer than the 5-6 months we were initially expecting, possibly even up to a year. Delays are also expected due to the Coronavirus situation and lockdown.

After treatment, Anna will need to come back to MSK regularly for follow up appointments and tests, including monthly visits for the first year.

Thank you to all of our Team Anna champions near and far, we are overwhelmed and incredibly grateful for everyone's continued support.

**********

In February 2017 we were told the devastating news that our beautiful 5 year old daughter Anna had Osteosarcoma, a rare form of bone cancer. In that moment our world and life as we knew it changed forever. Since then, Anna has endured 3 years of gruelling treatment. She's undergone numerous intensive rounds of chemotherapy each lasting almost a week at a time and had major surgery to remove the large tumour and whole humerus from her left shoulder and arm which was replaced with the fibula bone from her right leg. This resulted in her spending a long time in a wheelchair and needing daily physiotherapy to walk again and be able to move her arm. Due to her bones being weakened and thin from chemotherapy, she's also suffered fractures in her leg and in the new bone graft which took many months to heal.

For a few months in 2018, Anna had a brief spell in remission in which time she grew stronger and became more mobile, even managing to walk to school some days as she's always determined to spend as much time as possible with her beloved friends. She kept saying how she loved feeling “normal” again. We attempted to get our lives back on track and regain some happy home life and stability for Anna and her sisters Sarah & Ellen, but unfortunately this didn’t last long. In November 2018 we discovered Anna had another tumour, this time in the soft tissue in her shoulder. Telling her this news was heartbreaking. She was so scared at the thought of going through it all again, and of losing her beautiful new hair. At this time, she was transferred from Oxford to RNOH Stanmore and underwent more surgery the week before Christmas 2018 to remove the tumour then started five more intensive rounds of chemotherapy and six weeks of daily radiotherapy all at UCLH in London.

She is currently in remission for a second time but undergoes regular MRI and CT scans as the risk of further recurrences is extremely high and very likely. The NHS has helped us enormously since Anna's diagnosis and we are truly grateful to each and every person who has helped us and cared for her but we have to be realistic and recognise that treatment options in the UK are now very limited. Therefore, we have researched all options and treatments worldwide and Anna has been matched to a new targeted therapy treatment for the prevention of recurrence of Osteosarcoma at the Memorial Sloan Kettering Cancer Center (MSK) in New York, for which she has now been approved. The treatment is expected to take approximately 6 months.

There are links to read more about MSK and the official trial description below but this is a brief explanation of what the treatment is:

Cancer cells have a protein on their surface called GD2 which prevents our immune systems from detecting and attacking them. This new immunotherapy treatment uses an Antibody called Humanised 3f8 which attaches to the protein and focuses our immune system to detect and attack the cancer cells, it also uses a Protein called GM-CSF which increases the number of white blood cells, makes them better able to kill cancer cells and also makes the Humanised 3f8 more effective.

https://clinicaltrials.gov/ct2/show/NCT02502786

https://www.mskcc.org/immunotherapy-msk

Throughout all of Anna's treatment she's remained our funny, caring, life-loving bundle of joy, crazy about Olly Murs, Minnie Mouse, hippos, rainbows, unicorns, art, France, Mamma Mia nights and most of all her beloved toy “Puppy” who manages to appear in just about every photo and hasn't left her side throughout treatment. Even when she's felt really poorly from chemo or been in pain she's always remained positive and has been determined to get through it and at the same time try to help others.

She has raised thousands for the Oxford Hospitals Charity by taking part in the OX5 RUN (click to see video) She happily took on the role of their poster girl and promoted the run through radio, television and newspaper interviews. As Team Anna, 50 of our amazing friends and relatives completed the run with us, all wearing the craziest wigs we could find in support of children going through cancer treatment and suffering hair loss. The charity recently invited Anna to meet Prince Harry at the John Radcliffe Hospital in Oxford, where they told him about Anna being their OX5 RUN’s top fundraiser. She has also helped other cancer and children's charities through promoting their fundraising activities as she is always determined to give back and say thank you for the care she has received.

Along with her psychologist at the hospital, Anna has created superhero names and characters for cancer medicines and treatments which are being produced into superhero treatment cards so that other children, their families and medical professionals can use them to lessen the fear of procedures and treatments.

But although Anna loves helping others, she's now the one who needs help. We find ourselves in the incredibly difficult position of having to ask for help to fund her treatment and this is really hard for us to do, but we have to, for Anna.

Sincerest thanks for your support.

Ian, Keeley, Sarah, Ellen & Anna Drysdale

Please visit Anna's website at www.GoTeamAnna.org to see our fundraising events and Anna inspired merchandise.

Please view the video links below to see messages of support to Anna and a few videos created during her treatment:

Rick Astley supports Team Anna

Olly Murs supports Team Anna

John Bishop supports Team Anna

Jo Whiley supports Team Anna

David Bradley supports Team Anna

Lewis Capaldi supports Team Anna

Joel Pott from Athlete supports Team Anna

Jamie Dornan Supports Team Anna

A special message to Anna from the wonderful Jack Savoretti

Anna's reply to Jack Savoretti

When Anna met Jack

Anna's Dog Walk at Blenheim Palace

Anna playing the Ukulele

Hospital School

The Entertainer

Anna's Magic Thumb!

Oxfordshire Freemason's Christmas Panto

Anna and Dad playing the piano

Anna's Cryopreservation Fertility Treatment

End of Anna's second course of treatment

The deposit for Anna's immunotherapy treatment was $500,000. As her treatment progresses, further costs will be incurred for additional medical fees including medication, inpatient stays due to side effects of the treatment, living costs and any further ongoing treatment that may be required. We know it is a phenomenal amount of money to raise but we will go to any length to ensure Anna receives the best possible chance of beating this.

Once Anna has completed all her treatment or In the event of receiving more in donations than required, then amounts remaining would be donated and shared between Osteosarcoma research related charities and groups dedicated to making a difference to children like Anna.

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Updates

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  • Ian & Keeley Drysdale4 days ago
    Ian & Keeley Drysdale

    Ian & Keeley Drysdale

    4 days ago

    For the past 10 days the wonderful Jodie Nolan has sang one of her favourite songs each day live on Facebook in support of Anna. We can’t thank you enough for your kindness and support Jodie, you’re a star 🌟 It’s been so exciting getting ready to watch your “Live at 5” each day (12 noon NY time for us) It’s given Anna a real boost when we’ve watched from the hospital on treatment days, the nurses loved it too! Thanks so much for everyone’s generous donations, we are so grateful to you all ❤️

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  • Ian & Keeley Drysdale9 days ago
    Ian & Keeley Drysdale

    Ian & Keeley Drysdale

    9 days ago

    This gorgeous girl of ours is 9 years old today. She has already been through so much in her life, it completely breaks our hearts. She is our hero, she’s the absolute bravest, strongest, funniest and most loving person we have ever known or are ever likely to know. Happy Birthday sweetheart ❤️xxx

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  • Ian & Keeley Drysdale12 days ago
    Ian & Keeley Drysdale

    Ian & Keeley Drysdale

    12 days ago

    Despite still being in lockdown in NYC and being warned to expect long delays in Anna’s treatment, the incredible doctors and nurses at MSK have managed to get the necessary tests done to enable Anna’s 4th cycle of immunotherapy to go ahead today! We are so grateful to them all and we’re very relieved to stay on track with her treatment. It’ll be 5 days of injections by me first, including one on her 9th Birthday this Saturday, another Coronavirus test on Sunday, then 3F8 infusions next week. Huge thanks to you all for your ongoing support X

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9 months ago

Ian & Keeley Drysdale started crowdfunding

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Page last updated on: 5/24/2020 22.32

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  • Anonymous

    Anonymous

    May 24, 2020

    Best wishes...

  • Marlyn

    Marlyn

    May 24, 2020

    Stay strong and powerful during these times...

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