Hello, my name is Chloe, I’m 9 years old, I’m from Rotherham, and I’ve just been selected to go on the holiday of a lifetime to Florida!

At a young age I was diagnosed with Dravet syndrome,  a rare form of epilepsy that begins in infancy, and I have spent a great deal of time in intensive care units. Right now though I am very much looking forward to the annual Destination Dreams holiday, which is happening THIS December! 

Destination Dreams is an annual 7-day holiday to Florida, organised by Caudwell Children. 25 children with life-limiting conditions spend time with their favourite Disney characters, play in the water parks, eat great food, enjoy live entertainment and see the sights - and the great thing is that the whole family get to come too! Plus, we are fully supported for the duration of the holiday by a dedicated team of Paediatric Doctors and Paramedics.

My Mum, Julie, was delighted when I was offered a place on the trip, but now she’s in a race against time to raise the necessary funds to cover some of the cost of the holiday.

As she explained: “It costs the charity on average £10,000 to take each of the 25 families on this once-in-a-lifetime holiday, which includes the full medical team. These professionals are available 24/7, which gives families like ours real confidence. Every day is a struggle for Chloe, as she requires a great deal of care.''

Caudwell Children’s Chief Executive, Trudi Beswick, is urging the community to get behind Chloe's appeal. As she explained: “For many families caring for children with terminal or life-threatening conditions, the thought of leaving the protected environment of their home town, and their regular medical support, fills them with dread.''

Thank you for reading my story and I hope you are able to support me.

You can donate to my appeal here on just giving, or by text: DEST90 £amount 70070

Chloe

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