Your friends are fundraising. Don't miss out, opt in.

Victoria Douzamy

Charlotte's Champions

Fundraising for International Foundation For Cdkl5 Research
US$620
raised of US$4,000 target
by 7 supporters
Donations cannot currently be made to this page
Event: MoveCDKL5Forward2024, from 31 January 2024 to 16 July 2024
June is CDKL5 awareness month and we are getting out to walk, run, bike, MOVE to raise awareness and funds for the International Foundation for CDKL5 Research and CDKL5 Deficiency Disorder! Join us as we Move CDKL5 Forward towards a healthier future!

Story

Charlotte just turned 4. She does not care about clothes (but looks cute in everything), toys (dollar store pinwheels ftw!), parties, or outings. So this year we're fundraising for hope for her birthday. We love you Charlotte. Happy 4th birthday. Wishing you more joy, fewer seizures, and the strength to stand on your own!

Share this story

Help Victoria Douzamy

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

June is CDKL5 awareness month and we are getting out to walk, run, bike, MOVE to raise awareness and funds for the International Foundation for CDKL5 Research and CDKL5 Deficiency Disorder! Join us as we Move CDKL5 Forward towards a healthier future!

About the charity

The IFCR is committed to funding research that will bring about treatments and a cure for CDKL5 Deficiency Disorder. We strive to raise awareness of this rare condition and to help CDKL5 families by providing them the resources they need to thrive. CDKL5.COM Hope | Love | Cure
Find out more about fundraising with JustGiving

Donation summary

Total raised
US$620.00
Online donations
US$620.00
Offline donations
US$0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.