About CDG UK
Congential Disorders of Glycosylation (CDG) is an umbrella term for a very rare group of diseases that causes severe disability. There is no known treatment or cure. As the disease is so rare, there are very few children in the UK affected. CDG UK provides a support network and a patient voice.
http://www.cdg-uk.org
cdgukcontact@gmail.com
CDG UK Registered charity number HMRC Registered