Tirion Ray was one of a kind. Her personality and "can do" attitude meant everyone that met her was both inspired and fell in love with her.  

She was a healthy, active young person who like to spend time with her family & friends and enjoy life to the fullest. 

Then when she was 18 her life and that of her family was turned upside down. She was admitted to hospital in September 2013 after sufferer from seizures. They proved extremely difficult to control. In December 2013 she started to go into liver failure and the future looked bleak.  Tirion battle through and was discharged in February 2014 and started the long road to recovery. With grit and determination, she gradually gained mobility, but her life was never to be the same again.

A diagnosis of mitochondrial disease came as a shock to her and her family. This life limiting genetic condition, with no treatment or cure could have broken them, but they decided to fight for as long as Tirion wanted to. Supported by The Lily Foundation and all her amazing medical team, Tirion continued to live her new life to the fullest. She still enjoyed holidays and going out, she took up horse riding and did all she could to shout about Mito and get it into the mainstream. Mito had changed her life, but she was not going to let it control it.

Sadly, in April 2018, after a long spell in hospital Tirion said goodbye to her family and friends. So many people miss her, but all are inspired by her and are determined the fight for a cure will go on.

Team Tizzy is set in her memory to continue to do what she started. So, join us, you can donate directly or take on your own challenge. Together we can make a difference. She may no longer be here, but she is still very much part of everyone life.