Please join Team Lillow and help us help The Lily Foundation to find a cure for Mitochondrial Disease.

You can donate directly or take on your own challenge or event.

As a family we have been supporting them since Michelle (mum) ran the London Marathon in 2012.

Through this amazing charity we have been offered holidays had help with our garden and emotional support. We feel so glad to be part of the Lily Family.

Lily was born on 11th February 2009 appearing a healthy and contented baby reaching the usual milestones. It wasn't until she started to walk at 17 months that we felt something wasn't quite right, but it took until her 2 year check before a referral.

Here she was diagnosed with Mitochondrial Disease in July 201. Lily had stopped standing and walking unaided at this point. She was started on a cocktail of vitamins and underwent a muscle biopsy.

In 2012 we were told she had novel mutations in the NDUSF7 gene, Complex 1 Deficiency and it was called Leigh's Disease. We wanted another child, but our genetics counsellor told us we had a 1in 4 chance of recurrence.

Willow was born on 1st September 2013 and in January 2014 a specialist confirmed she also has the same mutation.

Lily had now been weaned of her cocktail and both girls take riboflavin daily as it is hoped that this boosts the energy production and may lessen effects from any stroke like episodes. They both seem to be doing brilliantly and we are proud parents to two happy, beautiful and determined little girls.