Three weeks ago we were offered £10,000 in matching funds and so set ourselves a target of raising £10,000. In the last three weeks, with wonderful support from hundreds of people, and matching funds that were increased as we raised more and more, we have now gone over £100,000. All of the funds we receive will go to fund EHE research, so THANK YOU to everybody who participated. And the campaign is still open for last minute donations.

EHE (Epithelioid Haemangioendothelioma) is one of the world’s rarest cancers. It can present in either gender and at any age. It is most prevalent in younger people, and affects women more than men on a ratio of about 5:1. It can present as passive or progressive. In the progressive form EHE is sadly very destructive and hard to treat. The passive form can turn aggressive at any time. We don’t know why this happens, nor can doctors predict it, making passive EHE a very tough condition to live with day to day. So what are we doing about this? In two words, fighting back!  

However, we can only defeat EHE if we can undertake research into the cancer; there is no other way. Sadly however,  very rare cancer research gets no funding from governments, none from the pharmaceutical companies, and almost zero even from the big cancer charities. So we have to raise the funding ourselves. If we don’t then those diagnosed with EHE will continue to face a grim future.  

And we have been doing that brilliantly thanks to a small team of dedicated supporters. Since we set up the charity two years ago we have raised nearly half a million pounds. But we have to keep going.  The EHE research we are already funding or will start in the near future will likely cost in the region of £2m to complete. We don’t need to have all that funding at the start as we already have substantial funds in our account. But we will deplete these funds which is why we have to ask people, many of whom have been fabulously generous, to help us again.