FROM THE HEART... BY: Lisa Marie (Mum to Gavin, sufferer of AADC Deficiency)

How would you feel if your child was not able to tightly wrap their arms around your neck to give you a hug or kiss. OR if you never hear them speak a word and are only left to dream about the sound of their voice that you will forever miss. 

If a doctor confirmed a rare diagnosis for your child that offered only devastation, depression, uncertainty, and hopelessness, what would you do. IF your child was exposed to countless and painful medical tests and the hospital became a home away from home, would your tears stop you from getting through. 

What if your child required ten or more doses of medication through their feeding tube every single day. UNFORTUNATELY, this is a reality for children diagnosed with Aromatic Amino Acid Decarboxylase (AADC) Deficiency that will never go away. 

AADC Deficiency is comparable to a rare form of childhood Parkinson’s disease, which affects the neurotransmitters in their brain. IT causes these children a whole lot of medical problems, as well as severe physical pain. 

Tearing a parent’s heart to shreds each time they learn that another child with AADC has lost their life to this disease it almost becomes difficult to cope. SO far there is no cure and treatment lacks much hope.  

Though YOU have the power to give these precious children and parents hope and save the day. BY donating whatever you can you will truly be a hero in SO many ways. 

If you would be so kind, will you please pass the word around to everyone you know from far to near. THE proceeds will be invested in research to discover a cure, and when that day comes, we will happily celebrate and cheer! 

The parents of children affected with AADC Deficiency want to thank you from the bottom of our heart. YOUR generosity has given these precious children hope and a very promising start! 

Thank you! 

www.aadcresearch.org

www.facebook.com/AADCResearchTrust/