UNDERSTOOD – IS THAT TOO MUCH TO ASK?

We want to create the biggest step-change since PSPA was established 30 years ago.

This opportunity for change has been inspired by a large legacy received in 2022 from Elizabeth Fiddler, requesting we advance research into PSP & CBD. As a carer, Elizabeth saw, first-hand the devastation PSP causes when her beloved husband was diagnosed. This was not something she ever could recover from, and on making her final Will, Elizabeth gifted her entire estate so PSPA could create change.

In response, we have launched an appeal to help to turn our research programme on its head.

We want to raise £2 million for life-changing research

Driven by our community, people living with the diseases, their carers and families, to change the future, PSPA is now fighting for PSP & CBD to be Understood.

To become Understood, we are launching a £2 million appeal to fund research that will help unlock:

Quick and accurate diagnosis

Consistent standards of care providing symptom management within two months

drug trials to delay degeneration and extend life expectancy.

Involvement need not be complicated. Consider opening your networks, sharing ideas, and join our community fighting for change.

Sign up to our community and learn how you can help by emailing understood@pspassociation.org.uk