Prader-Willi Syndrome (PWS) is a rare complex, genetic disorder that occurs in approximately one out of every 15,000 births. PWS is a spectrum disorder meaning symptoms vary in occurrence and severity between individuals. However the common characteristics are weak muscle tone, an overwhelming feeling of constant hunger known as hyperphagia, learning disabilities and/or learning difficulties and behavioural challenges. Many of the symptoms develop and change with age.

FPWRUK work alongside their sister company in the US to fund research and clinical trials in aid to improve the lives of a person with PWS and their families.