Theo's fight

Fundraising for Therapies & Equipment
Fundraising for Therapies & Equipment
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When I found out I was pregnant with a son, I had so many dreams and wishes for him. Playing football in the park, rough and tumble games, teaching him to ride a bike, listening to him read, and hearing him say "I love you, Mummy." I still want these dreams to become a reality and will do whatever I can to help. As a parent, I'm sure you remember first steps, first words, etc., and I won't miss those, however long it takes! Theo is my only child. He was born in July 2012, and straight away, we knew life wouldn't be what we imagined. Theo spent 30 days in SCBU and a neurology ward while doctors tried to decide why he had the issues he had. Theo was discharged without a diagnosis, but the pediatricians kept a close eye on him with lots of appointments. After being referred to a physiotherapist because he was so tense, we finally got the diagnosis of cerebral palsy affecting all limbs.
Since then, like every parent, I haven't wanted Theo to miss out on experiences, but due to his disability, life is not like everyone else’s. Theo has developmental delays, so at 21 months, the only milestone he's met is rolling over.
There are lots of pieces of equipment and therapies out there that could make life easier, and that's why I'm asking for help. I'm a proud person and wanted to do it all myself, but the reality is I can't, so I will do what I can to make his life easier.
Theo is happy, cheeky, determined, and charming, but also very stubborn. If he doesn't want to do something, he won't, which is why he walks with a K-frame but won't sit up.
He always has a smile on his face despite the pain and daily physio. He is so inquisitive and wants to join in with his friends, which is why our first goal is an Upsee, so he can stand tall for a little bit of fun and not have to worry about holding onto his frame.
As Theo's mummy, I do feel lucky that the NHS fights to provide Theo with basic equipment, but there is so much more out there. I also feel lucky that he was able to start at the Dame Vera Lynn Trust School for Parents when he was 9 months old. Conductive education has helped a lot too, and it’s given us the chance to meet other families going through similar experiences.
Our next goal is an adapted bike, but Theo needs to grow a lot before he can have one. He needs to be in age 2 clothes (9-12 months are still too big). We're looking at over £500 for a bike, and that's just the first one!
Theo is trying so hard at the moment; it's been hard due to a growth spurt, which has made moving difficult for him.
We have decided to use some of the money raised to pay for a private physiotherapist, visit Brainwave, and hydrotherapy for Theo, as we feel this would be really beneficial for him and us! We are also raising money to buy Theo his first powerchair that will be suitable for his needs! We would also like to be able to buy Theo other equipment to help with his physio or daily life!
Exciting news!!!! We have just read an article about a young lady named Holly who went to California for a stem cell transplant. We have been in touch with the doctors who carried out Holly's transplant, and they feel Theo would be a good candidate. The worst thing that could happen is there would be no changes. To start this process, Theo would need his brain mapped to see the areas of the brain with high or low frequency, and if, with some work, this could be changed so Theo could start using new areas of his brain! This is now our new fundraising goal – to go to California for Theo to have a stem cell transplant to see if it could make a difference to his life!
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
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