In 2025 we are aiming to have our biggest number of London Marathon runners. We already have five charity places , so if you have a ballot place or you are looking to complete the virtual MyWay marathon then why not join #TeamTSA.
The TSA is the only UK charity dedicated to supporting and representing everyone affected by TSC. We’re here for everyone in the TSC community, including families, individuals and professionals focused on TSC.
Your fundraising means the TSA can continue working hard to help people today and find a cure for tomorrow through:
Support and information - Our free TSA Support Line, providing up to date information and our annual flagship annual events.
Research - Funding world-class research into the causes, management and treatment of TSC so we can continue to make major breakthroughs.
Campaigning - Influencing NHS policy to ensure that the needs of people affected by TSC are met and they get the treatment and care they deserve.
As a family, we’ll always be thankful for the TSA. Knowing that they’re here, fighting every day for people with TSC, is uplifting and helps make the future brighter - Mum, Laura Holt
The dedication and hard work behind raising vital funds means that the TSA can ensure that no-one is ever alone with TSC.
The TSA will never stop being here for individuals and families affected by TSC.
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As the only UK charity focused on Tuberous Sclerosis Complex (TSC) we :
• Improve the health/wellbeing of people living with TSC and their families/carers
• Lead research into technologies and treatments to reduce TSC’s impact
• Lead innovation into medical and social care service integration