Team Timmy are joining together to fight for a cure for Mitochondrial Disease

Organised by The Lily Foundation

Inspired by his strength, Team Timmy are joining together to help The Lily Foundation beat Mito by funding vital research and supporting all those families affected by this cruel disease with no treatment or cure. Together we will change this!

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Story

Timothy started to be unwell when he was about 4, lots of investigations and tests took place over several years, up and down the country.

We eventually got a partial diagnosis from a Muscle Biopsy that was carried out at Great Ormond Street Hospital.

Timothy's muscle showed a lipid storage myopathy and his urine was consistently kicking out 3-Methylglutaconate aciduria.

This along with his symptoms shows that his Mitochondria aren't functioning properly. Mitochondrial Disease is a life limiting, degenerative, evil illness.

Timothy is now looked after by specialist Mitochondrial Disease teams in Sheffield and Newcastle. Sadly there isn't a treatment or cure for Mitochondrial Disease, Timothy takes a Mito cocktail.. it contains various vitamins which are thought to help his symptoms. Hes fed through a tube into his intestines and uses a wheelchair to get around.

He is amazing, he never ever complains.. hes a true warrior!

Somewhere along the way we found The Lily foundation, its a Charity that we hold close to our hearts. They help give us some hope, weve made life long friends and connected with other families. Lily fund vital research into Mito and keep us up to date on the latest findings.

The family weekends that they offer are invaluable.. we get to spend a whole weekend with Mito experts from around the country.

Lily have set up Team Timmy page for us, we can donate to them in Timothys name, itll keep it easy and all in one place. Theres a link for anyone who wants to do any fundraising in Timothys name.

Thanks to anyone who donates, and thanks to Lily for giving us some hope and support

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Donation summary

Total
£1,051.96
+ £72.45 Gift Aid
Online
£1,051.96
Offline
£0.00
Direct
£1,046.96
Fundraisers
£5.00

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