Our son, Thomas, was diagnosed with Duchenne Muscular Dystrophy in October 2023, aged 2 years old, after concerns with late crawling / walking. Since his diagnosis we  have gone through a rollercoaster of emotions, however, Thomas remains the smiley, happy, singing and dancing chatterbox of a little boy, and his happiness everything to us.

The future for DMD families looks so promising, with ongoing research and trials giving families like ours so much hope, which allows us to remain positive for Thomas’ future.

Duchenne Muscular Dystrophy (DMD) is a devastating muscle-wasting disorder. It is the most common and severe form of muscular dystrophy and, diagnosed in childhood, it mainly affects boys. Started by families affected by the condition, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families, to advance and accelerate every stage of drug development. Together, we will end Duchenne.

By supporting our cause, you are joining us in our mission to connect the top researchers with industry experts, healthcare providers, and affected families. Together, we can advance drug development and accelerate progress towards finding effective treatments and ultimately a cure for Duchenne muscular dystrophy.

Your generous contribution will directly impact the lives of those affected by this debilitating condition.

Join us today in making a difference for children living with Duchenne muscular dystrophy. Your donation will bring hope to families like us, who desperately need it.

Together, let's end Duchenne.

Danielle and Liam