Isla Ruby Harris is our beautiful daughter who was only 9 months old when she passed away from mitochondrial disease, something we had never heard of until we were in alder hey.

Isla was full of laughter, smiles and cheeky faces, she had a fake cough to get attention and a very infectious laugh.

Ryan took Isla to our local hospital on the 21st June as she was lethargic and very sleepy. They quickly discovered she had fluid around her heart and we were rushed to alder hey. We had 5 weeks of every test possible with the possibility of mitochondrial disease looming over us, eventually a muscle biopsy revealed it was mitochondrial disease that had caused heart failure.

We had to say goodbye to our beautiful girl. Hundreds and hundreds of tests and 2 chances on ECMO were not enough to help our daughter.

Since we found out about this disease we are shocked to learn how its not really talked about that often or understood by many people.

Every day in the UK a child is born who will develop this devastating condition. Currently there is no treatment or cure and this needs to change. We'd like to spread awareness and keep our baby girls memory alive and try and find a cure to this disease.

Please if you can take on a challenge in her name and raise money to support other families affected by Mitochondrial Disease and fund important research to find a cure.

Thank You