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During this challenging time, we are all adjusting to new routines but our efforts on behalf of the (congenital hyperinsulinism) HI community are not wavering. What hasn't changed is the critical need for research for diagnostic tests that would increase timely diagnosis, tools for better management of HI, new treatments, and one day, a cure. That's why Team CHIbra is raring to go for CHI again this year! This can't wait.
We hope you can join Team CHIbra to raise HI research funds. HI is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death.
Our fundraising timeline is short to reach our overall goal of raising a minimum of $20,000 by June 30, 2020 and very donation counts big and small!
Your fundraising dollars will be used for research to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism. The first $20,000 we raise is matched by the University of Pennsylvania, our partner in funding research. Thanks to all of you, CHI has raised over $450,000 for congenital hyperinsulinism research. Lets keep funding research for a brighter future!
How can you support Team CHIbra this year?
* Share this page with friends and family and through social media to ask for their support to raise funds and awareness Donate $5, $10, $25 every gift matters.
* OR click the Orange Start Fundraising button to the right and you'll be on your way to creating your own Team CHIbra Raring to Go for CHI fundraising page that you can share with friends and family.
Maximize your fundraising impact! Ask your friends and family to support our shared cause. Personalize your fundraiser with stories, photos, and videos. You can manage your fundraiser from start to finish on your personal fundraising page.
Team CHIbra is raising these funds as part of the Million Dollar Bike Ride initiative, a project of the Orphan Disease Center of the University of Pennsylvania. This year MDBR is going virtual too on June 13, 2020 learn more here: https://www.milliondollarbikeride.org/
Join Team CHIBra and get going today! All monies must be raised by June 30, 2020.
Need a hand? Call Jennifer at 973-544-8372 or email jschmitt@congenitalhi.org
Past fundraising efforts have resulted in the following research grants:
*2018 Grant Recipient: Dr. Amanda Ackermann of the Children's Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.
*2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children's Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism .
*2016 Grant Recipient: Dr. Changhong Li of Children's Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism .
*2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy .
*2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism.