Bills Mito Battle

Bills_mito_battle is all about raising money and awareness for The Lily Foundation and all the work they do around Mitochondrial disease in the name of Bill Percy Gornall– Our Mito Warrior!

Bill is a unique little boy. In 2020 he was diagnosed with Mitochondrial Disease – MELAS. Mito is a degenerative condition affecting the mitochondria in your cells which provide 90% of the energy for them to perform properly. If the mitochondria are unable to produce energy for the cell it dies and the organ the cell is supporting can fail.

We were soon forwarded the details of The Lily Foundation, the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe. From feeling isolated and apprehensive we have quickly learnt that we are not on this journey alone and that The Lily Foundation and the wonderful people associated with them are walking with us every step of the way. Their mission is to improve the lives of people affected by mitochondrial diseases, while working towards a future where mitochondrial diseases can be effectively treated or cured.

Whilst we continue to build happy memories and enjoy the time we have together as a family we are committed to raising as much money and awareness as we can of the condition and the work the foundation does. We believe that through awareness and knowledge comes hope! Hope that one day there will be a cure, hope that medicines will become available to extend Bills time with us.