We have set up this fundraising page in memory of our beautiful little boy Aidan. Aidan was diagnosed with Mitochondrial disease ( a non treatable, non curable disease) aged 11 months, until then he was a happy healthy normal little baby who loved eating marmite! but after diagnosis our lives changed forever.
Aidan's muscles were failing as he had Mitochondrial DNA depletion Syndrome (MDDS). He was a clever happy little boy who was trapped in a body that was failing him. He passed away in hospital on 1st March 2014 aged 19 months.
We want to raise money for the Lily Foundation who are a charity supporting families of children with mitochondrial disease and fund pioneering research into a cure for this debilitating life threatening disease.
Since losing Aidan we have been able to have another healthy child which was only possible as a result of the research and diagnosis that the scientists carry out at the Mitochondrial Lab at Newcastle Uni. The Lily Foundation help fund this research.
Through your donations the Lily foundation can continue to support the scientists and doctors to make a breakthrough, and also support the many families who have children affected by this disease.
You can read more about the Lily Foundation here: http://www.thelilyfoundation.org.uk and Aidan's story written by mummy and daddy can be found here: http://www.thelilyfoundation.org.uk/our-inspirations/aidan-pond/
We have recently updated our page - to view all historic direct donation please have a look at our old page
https://www.justgiving.com/campaigns/charity/lilyfoundation/teamaidan