A few years ago, I was diagnosed with GNE Myopathy, a rare neuromuscular condition affecting fewer than one in a million people. It causes progressive muscle weakness, starting in the legs in young adulthood and gradually impacting other muscles across the body. Over time, it leads to significant mobility challenges. Because it’s so rare, GNE Myopathy is often misunderstood, resulting in delayed diagnoses and limited support.

For me, fundraising for Muscular Dystrophy UK (MDUK) is about more than awareness - it’s about hope. Every day, I face the uncertainty, isolation and challenges that come with a progressive condition. But I also know that research and the right support can change lives.

This fundraiser supports MDUK's vital efforts in advancing research, providing resources for patients, and building a stronger support system for individuals and families affected by muscle-wasting conditions. Every donation goes directly to their work.

Thank you for being a part of this.