The Million Miles Campaign is a fundraiser benefitting the Sturge-Weber Foundation and research initiatives. The duration of the fundraiser is 3 months (April 1 June 30, 2021). It is an opportunity for EVERYONE to participate in something bigger than themselves that will ultimately lead to the improvement of life for SWS patients and families.
SWF team captains will build teams across the United States. These teams will consist of patients, family, friends and interested donors. Each participant is requested to achieve one million steps and minimum of $1000 in donations (1 cent per step). Our hope is to cover one million miles collectively and raise $300,000. As each person takes on their role as a walker, a runner, or cyclist, they are going the distance for SWS.
With the funding raised through the Million Miles Campaign, the Foundation will be able to:
1. Provide funding to researchers specifically leading investigations in SWS
2. Provide opportunities for professional collaboration to obtain a better understanding of SWS, best treatment practices, protocols and pharmaceutical therapies
3. Deliver educational information to patients and families on the most up to date medical information regarding treatments, pharmaceuticals, and physicians/ institutions that specialize in SWS treatment
4. Provide a community for SWS patients and families to navigate their individual journey with SWS together.