A group of dads who are members of our charity as they each have a child affected by Sturge Weber Syndrome have decided that they would like to do the Welsh 3000 challenge to raise money for our charity, awareness of the condition and promote men’s mental health.   

Their aim is to raise much needed awareness for the rare neurological condition Sturge Weber Syndrome which affects approximately 1 in every 20,000-50,000 individuals.  The most common issues associated with Sturge Weber Syndrome are a port wine stain, glaucoma, epilepsy, and autism.  

This is not a challenge for the faint hearted! In order to complete the Welsh 3000s Challenge they will be required to have been at the top of all 15 of the mountains over 3000 feet in Wales within the space of 24 hours, without using any form of transport. The length is about 24 miles, but the walks to the start point and down from the finish point can take it to over 30 miles in total.

Sturge Weber UK relies solely on public donations, to enable us to assist the well being of those individuals, their families, friends, helpers and carers by providing information and support. Any kind donations made to Sturge Weber UK have a direct beneficial impact on children and adults affected by Sturge Weber Syndrome.