During this time of crisis, the lifeline services provided by SHA are even more crucial for Scotland's Huntington's disease (HD) families.

"We miss our Mum, we've never had to go this long without being together. For Mum, not knowing when or if she'll see her kids again is her worst nightmare come true. She keeps asking to see us and we have to say 'no' because we want to keep her safe. On top of that, I've lost shifts at the bar where I work and our dad isn't sure what's happening with his job."

Cameron Newport, 19, student and SHA Youth Ambassador, from Fife.

Mum-of-three Wendy, 46, who has Huntington's disease, moved from the family home to a care home 10 years ago as her symptoms became more severe. She depends on regular visits from Cameron, Declan (16), Tiffany (15) and their dad Alex, and is struggling without them during the lockdown.

"We're used to seeing each other and are using video apps to stay in touch but because Mum's speech is affected by the HD, she's becoming very frustrated because we can't always understand what she's saying," said Cameron. "As time goes on, she's more and more anxious and it's impossible to give any real reassurance because there's no way of knowing how long this will go on for," said Cameron.

We urgently need your help to make sure no one is left to cope alone during this time of unprecedented crisis. Please join our Stay Home and Step Up campaign and together we'll reach HD families all over Scotland.

Stay Home and Step Up ...

For school pupils caring for family members.

For households facing additional financial hardship.

For families who fear having no one to turn to.

For young people unable to visit parents in care homes.

https://hdscotland.org/stay-home-and-step-up/