Story
As part of World Scleroderma Month 2022, we're asking you to show your support through our Snuggle Up for Scleroderma fundraising appeal.
Each winter, as the temperature drops and it gets harder for people living with scleroderma to keep warm, Scleroderma Australia works hard to raise awareness and funds.
This year we're proud to be raising funds to pay for a specialist scleroderma nurse who will provide much-needed support to people living with the condition.
How can you help?
One of the ways Scleroderma Australia celebrates World Scleroderma Day on 29 June is by encouraging people to hold a Snuggle Up event. This can help raise awareness for our cause and raise funds to support those who are living with this condition and to help find a cure.
You can hold a Snuggle Up event that involves you keeping warm this June. You could:
- Hold a slumber party in your favourite PJs, either in real life, or online
- Organise a film night and gather friends at your place or online
- Host an afternoon tea wearing your favourite gloves and scarves,
- Arrange a casual clothes day at work.
Your donation will go directly towards helping fund a specialist scleroderma nurse, improving access to medical care for people living with scleroderma.
People like Nia. Nia had recently graduated as a registered nurse when she was diagnosed with scleroderma. Despite her training, she had never heard of Raynaud's Syndrome, a major contributor to finger wounds or scleroderma.
"I was shocked that I'd never heard of Raynaud's syndrome or scleroderma. I wanted to know what had caused it, what symptoms I could expect and how to manage them." Nia recounts.
See Nia's story here:
Having access to such valuable support, Nia feels a little less alone, "As well as seeing her at my local public hospital, I phone the scleroderma nurse regularly."
Will you donate today to help us reach our 2022 fundraising goal?
Your generous fundraising efforts will go directly towards funding a specialist nurse or our other priority project to help treat and advise people like Nia living with this life-threatening condition.
Thank you.