Smile with Shiv is a Family & Friends Fund supporting Duchenne UK, in memory of our beautiful son, who we lost too soon. Run free our sweet baby boy, forever in our hearts.

In April 2014, at the age of 3, our fun loving, caring and ever so cheeky son with the most beautiful smile that is always commented on was diagnosed with Duchenne muscular dystrophy (DMD), a devastating muscle-wasting disease. Shiv was like any other boy his age on the surface; but his condition meant that he was getting weaker by the day. Coming to terms with Shivs diagnosis was extremely difficult for us, however, despite his diagnosis, Shiv always had a smile on his face and lived his best life.

We lost Shiv this year, 2023. This fund will continue to raise money to find a cure for this awful disease in his memory. We could not be prouder of our son. He has left an incredible legacy behind him.

About Duchenne UK

Duchenne UK was started by families affected by the disease, just like ours. They are the leading DMD charity in the UK. They connect the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.

Please support Smile with Shiv. Together, we will end Duchenne.