Story
Thrombotic Thrombocytopenic Purpura (TTP) is a rare, life threatening blood disorder.
Patients will require life long follow up and care as some will relapse.
TTPNetwork was established in 1998 to provide information and support to patients and their families. We host a comprehensive website, a facebook page and regular webinars and face to face events.
I was lost and lonely but TTPNetwork gave me hope and a sense of belonging with the amount of support and help, especially when going through relapses and treatments.
Knowing I have a supportive TTPNetwork family as well as my own in this journey makes a big difference to my wellbeing.