Roarsome Rorys Raisers was set up by Mum Kerry Bentley for her son Rory. Rory was diagnosed with Becker muscular dystrophy in August 2020 and since then Kerry has thrown herself into fundraising and becoming one of MDUKs Family Funds was the obvious next step.

As part of the diagnosis the paediatrician told the family to go the the MDUK website and that was a life-saver. They had just three weeks to prepare his school, who had not previously had a child with muscular dystrophy, for Rorys arrival. The MDUK information enabled them to inform them about what to expect. Signs of Becker muscular dystrophy often include muscle problems, such as difficulty running, climbing stairs or getting up from the floor.

Kerry and husband John are looking forward to getting involved in more fundraising for MDUK, 80% of the funds will go towards research, with the remaining 20% held in trust for Rory's future needs.