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This year Rainbow Trust's Children's Charity RideLondon team will be be riding as part of Team Henry to raise funds for children we support like Henry Haire.
Henry was born with a rare condition called Posterior Urethral Valves which has left him with severe kidney and bladder damage. Henrys working kidney is currently functioning at 17% and when this reduces to 15%, which doctors believe is imminent, he will need a transplant.
Rainbow Trust Family Support Worker Nicki has been supporting Godfrey, his wife Beccy and sons Henry 8 and Thomas 6 for 2 years.
Godfrey said: Nobody expects to be in our situation, including us and as amazing as our friends, family and colleagues have been and will continue to be, there are times as a family we just need that extra bit of support. This is where Rainbow Trust and Nicki stepped in. The boys love Nicki. She is there whenever we need her. She is also a brilliant emotional support when the stresses and strains of our situation gets too much. Nicki has been on this journey with families hundreds of times and because of that she understands the doctors jargon, she knows her way around the hospital and she is a dab hand with a Nerf gun.
Godfrey is preparing to donate his kidney to Henry when the functionality of his drops below 15%. Godfrey said they will be relying most heavily on Nicki when he and Henry undergo the kidney transplant. Godfrey said, At the moment we dont know when the operation will happen because we have to wait until Henrys condition becomes critical. Im scared at the prospect of having the operation as its such a huge ordeal for both of us. Ill be off work for up to six months and Ill be at Guys Hospital while Henry will be looked after at the Evelina Childrens Hospital. Although Henry has already undergone 30 operations in his short life, this one will be hugely significant. Im nervous but equally excited that if the operation is successful it will make life so much better for Henry.
By taking part in RideLondon for Rainbow Trust you will enable us to support more families with children like Henry.
£10 could pay for a basic sensory toy
£23 is enough to provide an hours vital support
£44 could buy a memory box to capture memories of treasured times
£69 provides hospital support