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Get moving this JULY with the NKH 100 Mile Virtual Challenge!
100 Miles along the Thames Path – Streatley to Sea! Walk, run, cycle, swim, dance – you choose! Anyone, anywhere can participate. All you need is a smartphone. All proceeds raised go towards NKH Research.
Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.
The Mikaere Foundation supports children and families living with NKH, and NKH Research and gene therapy - a treatment which would radically improve the quality of life of children with NKH.
A future for NKH children starts here!