Action Duchenne

Action Duchenne team are supporting the next generation of adults living with Duchenne

Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.
£13,319
raised
RCN 1101971

Be a fundraiser

Create your own fundraising page and help support this cause.

Start fundraising

Story

Transition from paediatric to adult care is a challenging time for young people and families living with Duchenne. This process goes hand in hand with the move into adulthood, another difficult process for many individuals living with Duchenne who increasingly may find independence challenging, struggle with managing their own care, finding a job and in reaching their full potential.

Our project has a simple aim: to empower adults living with Duchenne, so they can seize control of their lives. We want to remove the limits imposed by the challenges of transition.

£21,000 will enable us to offer 8 places on our inclusive residential weekend of workshops, meetings and events to provide professional and peer-led life skills training in a non-clinical setting.

Thank you

A big thank you for supporting our life-changing support projects, which will have an impact on so many young people and adults living with Duchenne here in the United Kingdom.

Share this story

Help Action Duchenne

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Action Duchenne

Verified by JustGiving

RCN 1101971
We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£13,318.58
+ £1,738.00 Gift Aid
Online donations
£13,228.58
Offline donations
£0.00
Direct donations
£0.00
Donations via fundraisers
£13,318.58

* Charities pay a small fee for our service. Find out how much it is and what we do for it.