'Milo is an inspiration to so many and was throughout his treatment, so we want his experiences to count and help other families by raising funds and awareness of the physical and psychological impact of cancer as well. Milo is one voice amongst many, let’s make it count!' Milo’s parents, Becky and Paul.
The Milo’s Voice Fund has been created by Milo’s parents, Becky and Paul after their four-year-old son Milo was diagnosed with high-risk neuroblastoma in 2021. Milo is now a charming and funny six-year-old who loves animals and nature. Milo has a loving family and two sisters he adores; his neuroblastoma diagnosis impacted the entire family.
The funds raised through Milo’s Voice will go towards Solving Kids’ Cancer UK’s four key charitable activities; funding research; providing education, advocacy, and support; providing pastoral funds to families we support and supporting those fundraising for access to treatment.
At age four Milo was unexpectedly diagnosed with stage 4 high-risk neuroblastoma. At diagnosis, doctors discovered a tumour in his stomach and cancer in 95% of his bone marrow with ‘innumerable’ spread throughout his entire little body. This included his liver, lymph nodes, spine, pelvis, legs, and arms which was causing excruciating pain for Milo.
“In March 2021 our family’s world suddenly changed forever. A flood of disbelief and fear hit me so hard, yet I could not move or breath in those moments. Words do not do justice to explaining such shock and devastation as I gazed at my child and felt so scared and lost as he looked up innocently and simply said ‘Does this mean I’m ok Mummy, are we going home now?” Milo’s mum, Becky.
Milo’s treatment was intense and gruelling and included induction chemotherapy, surgeries, high-dose chemotherapy, stem cell transplant, radiotherapy, and immunotherapy. In August 2022, at the end of frontline treatment, scans showed that Milo had ‘no evidence of disease’ and his body was finally clear of disease.
No Evidence of Disease marks the end of NHS treatment and as such the family were able to ring the end of treatment bell. This bell marked a poignant point of reflection for the family and was an opportunity for them to give thanks to the many medical professionals who had been part of their daily lives for so long and helped to save Milo’s life.
“Although we cannot put into words our relief to hear this longed-for news that Milo has no more disease, there remains a sadness over our experiences so far and adaptations to manage the long-term side effects of treatment alongside a deep fear as a family that his awful cancer could." Milo’s parents, Becky and Paul.
The Milo’s Voice fund with Solving Kids’ Cancer UK is to help fund innovative Research into neuroblastoma with the aim of advancing treatments and survival rates of children affected by this terrible disease and supporting families. Milo’s family continues to pause, reflect, and try to heal emotionally from the journey they have been through and adjust to the ‘what if’ life ahead of them.
The Milo's Voice fund at Solving Kids Cancer UK is for anyone who wishes to donate and fundraise in Milo's name.
There are many ways you can support the Milo's Voice fund: by making a personal donation; by sharing their story on social media, holding a fundraising event; or getting sponsored to take on a challenge.
To donate by text, send MILOSVOICE followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It wont matter if you leave a space before the number, if you include a £ sign or whether you use upper or lower case.
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
