Just4Children

Millie's Journey with Syringomyelia

Just4Children are fundraising for Millies spinal surgery in Barcelona to stop progression and relieve her syringomyelia symptoms. In addition, regular therapy and specialist equipment will help Millie progress and ease her discomfort.
£31,603
raised of £20,000 target
Closes on 01/01/2026
RCN 1164473

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Story

Millie is almost 2 years old and lives in Yorkshire. She was born at full term with no health concerns until she failed to reach her gross motor milestones. As Millie has grown, its become clear shes unable to effectively use her legs due to spasticity. She uses a standing frame as she cant stand independently and gets around mainly by commando crawling. Shes a determined little girl, works hard on her home physio and always has a smile on her face.

Following months on waiting lists, Millies MRI results confirmed that she has syringomyelia, a disorder in which a fluid-filled cyst forms within the spinal cord. We are fundraising to take Millie to an institute in Barcelona which specialises in the disorder. They intend to perform a spinal surgery to release pressure on the spinal cord in order to stop the disorder from progressing further, which may also relieve her current symptoms giving her a chance to learn to walk and become more independent. The procedure comes at a cost of approx £20,000 and isn't available on the NHS.

So, we are asking for help, which isnt an easy thing to do but you will do anything for your child and we need this surgery to give Millie hope for a better future. If you can donate any small amount towards her surgery and physio and equipment costs or even just share this link, we would be forever grateful.

Thank you for reading this and for all our friends and family who have already been supporting us on our journey.

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About the charity

Just4Children

Verified by JustGiving

RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Donation summary

Total raised
£31,602.89
+ £3,067.35 Gift Aid
Online donations
£31,572.89
Offline donations
£30.00
Direct donations
£28,980.49
Donations via fundraisers
£2,592.40

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